I was just told that my recent endoscopy confirmed three separate ulcers, CMV, and GVHD in my gut. This means that I go back up on the immunosuppressants, I continue ECP treatment (more appointments), and I will continue either foscarnet or ganciclovir. Most likely, I'll be at the VA every day for several hours, and I may have multiple appointments. I am so burned out at this point; this is the worst news that I could have received. Upon hearing the news over the phone I broke down.
At this point, I wish that God would either heal me or take me home. This treatment is destroying me and there seems to be no end in sight. Just when I thought there was a light at the end of the tunnel, it was only a gap before another dark and endless tunnel that I really do not have the energy to traverse. If it were not for God, I don't know what I would do at this point. I alone, certainly do not have the energy to continue. All I can do is pray for strength to proceed.
Dear Nathan, I honestly don't know how you manage this. You have INCREDIBLE strength. I wonder, as outlandish as it may seem, if you would not heal faster on top of a mountain, breathing fresh air surrounded by nature or on a secluded beach with the sound of waves lapping on the shore. I keep you in my prayers Nathan that something changes soon. You are Loved...Peace, Lisa
ReplyDeleteI've also wondered what would happen if I just escaped to the woods or some island and stopped taking all the medicine.
DeletePrayed for you and cheering for you here, Nathan.
ReplyDeleteThank you Daniel.
DeleteI hope your Christmas is merry and full of cheer! :)
ReplyDeleteSorry I'm a bit late, but I hope you had a good Christmas and have a Happy New Year!
DeleteNathan, I pray every night with Christine and the kids for your quick recovery. You will be in a good place either way.
ReplyDeleteI'm hoping that 2017 brings an end to all of this.
DeleteOur dear brother in Christ, praying for you, hoping you were encouraged and strengthen by the reminder of your Savior's birth. May our Lord keep holding you in His arms. Much love! the brandts
ReplyDeleteThank you for the Christmas card! Your family looks great, and I hope you're enjoying the new home.
DeleteNathan,
ReplyDeleteI think of you often. You are always in my prayers.
Thank you for the prayers; God has been faithful just to keep me alive this long.
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