I recently had an endoscopy which did not reveal any evidence of gut GVHD; however, the CMV is still present. So what does this mean?
The bad news is that I still have this nasty CMV that is contributing to my fatigue, general malaise, and will require additional antibiotics until another endoscopy reveals that the CMV is gone.
The good news is that I can start tapering some meds again. Going down on prednisone will help me recover my immune system, which can ultimately help fight off the CMV. It will be slow, and I still have to contend with CMV; but this is a positive step forward.
Please pray that the GVHD does not return as I begin the steroid taper. I am very thankful that God has sustained me this far and coming down on prednisone is truly an answer to prayer. That drug has really taken it's toll over the past year, and I was beginning to break down both mentally and physically. I really don't know how much longer I can take being on all these immunosuppressants and steroids. It feels like a slow march to death despite being told that I'm "progressing."
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